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Greetings and welcome to my Lyme disease blog, a comfy cozy (and sometimes crazy!) place for cutting-edge information, encouragement and insight into the fastest-growing epidemic disease in the United States. In this blog you will find everything from bug-killing strategies to immune system and hormone help, as well as lifestyle and spiritual suggestions for healing from chronic illness involving Lyme disease. The information contained within this blog is based upon my own healing journey and what I have learned over the past eight years as I have been diligently digging and researching my way back to a better state of health. May you find it to be a source of hope, inspiration and wisdom in your own journey towards wellness.

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Published August, 2009
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Monday, April 07, 2008

The Politics Of Lyme Disease

Something very wicked is going on in the world of Lyme disease. I'm not a conspiracy theorist at heart, but the more I learn about the lies that keep Lyme disease sufferers from adequate treatment, the more I realize I need to write about them. This blog hasn't typically been dedicated to the politics of Lyme disease, but today, I'm in the mood for sharing some difficult truths with the world. And not because I'm angry, but because something needs to be done about this situation.

Did you know that Lyme disease, the fastest growing infectious disease in the nation, is being denied by governmental institutions as a serious problem? Are you aware that the FDA, CDC and government-sponsored Lyme disease organizations are ignoring blatant evidence that a few weeks of antibiotics won't cure chronic Lyme disease, and in fact, are stating that chronic Lyme disease does not exist, when millions of sufferers have shown symptoms and test results to the contrary? That it does not exist, even though years of antibiotics or alternative remedies have ended up curing thousands of patients from that which their doctors initially told them they did not have?

Have officials of the FDA, AMA, CDC and government-influenced Lyme disease organizations all been brainwashed into believing a lie about this illness, or do the dark forces of money and fear rule their decisions?

Why won't some of us acknowledge that perhaps something very evil is going on within the healthcare system? Is it that we need to believe that these governmental and other organizations are working for our good? What would be the ramifications of another truth, if that truth were as dark as I am painting it to be?

Yes, government institutions are made up of people; some of them with good intentions, others, not so good. But are those who are not well-intentioned capable of deliberately denying healthcare to millions whom they know are disabled or dying of Lyme disease? I would say it's possible.

Most of you who read my blog are well-educated on this subject and what I am sharing here is old news to you. But to others, what I write may be viewed as simply one crazy lady's Lyme-brained opinion, despite the fact that volumes of evidence exist to back up what I have written about the government's errant approach to Lyme.

So why won't these people open their eyes to reality?

I think it's because, for some, accepting the truth about Lyme disease means accepting that they have been deeply betrayed. Like a parent who was supposed to protect them from the evils of the world, they instead wake up one day to find that this parent is a part of the evil, rather than their salvation from it. They depended upon that parent to help them when they were sick, but instead that parent turned a blind eye to their needs. That parent is their government; it is the FDA, the CDC, and the physicians they looked to for help, but who instead turned them away.

The other difficulty in accepting truth has to do with the responsibility that is associated with owning that truth. When we know facts that could save lives, we have to become activists or live with aching consciences, and becoming an activist involves risks. It will mean some furrowed brows, alienation from friends, and perhaps even persecution by the forces that were supposed to protect us.

But what if we don't? What if we disregard what we know to be true because we can't deal with the betrayal and the consequences of sharing what we know with others? In the case of Lyme disease, it can only mean one thing: the number of chronically ill will continue to rise exponentially and millions will eventually be left without a means to treat their illness. Over time, a significant percentage of the population will become disabled, resulting in a multitude of devastating consequences for our nation, and the world.

As it is, those physicians who understand the truth about Lyme disease are being persecuted for providing proper treatment to their patients. Indeed, any doctor who does so is to be highly commended because this person risks not only his/her license to practice, but also perhaps, his or her livelihood. Those who have been the greatest blessing to the Lyme disease community, those who have healed thousands of Lyme disease---tragically, are those who are currently under fire by the medical establishment. Don't believe me? Please don't. Do some research and decide for yourself.

I wish I could say that what I write is an exaggeration, but it barely fills the first page in a volume of lies, deceit and corruption that is destroying the lives of millions in the United States and around the world.

So why is there so much controversy surrounding Lyme disease? Why do the CDC, FDA and corrupt Lyme disease institutions deliberately deny the prevalence of, and treatment for, this
hideous disease?

I wish I had all the answers, but I surmise that if the truth were to be acknowledged, then thousands of malpractice lawsuits would ensue, and the costs associated with those would be tremendous for the powers that be. Then there would be other costs, such those who would suddenly be entitled to disability benefits for their "mystery" illnesses.

But I think the reasons go even deeper than that. Lyme disease is thought by those who are "in the know" to be a biowarfare complex escaped, or released, from Plum Island, Connecticut. A disease comprised of borrelia and at least seventeen co-infections, that were nicely packaged together to disable but not kill most who would be infected by it. What would be the ramifications if this were a fact and it became widely known by society? Yes, it's just hypothesis, but hypothesis with quite a bit of substantial evidence behind it.

I'm going to just leave you with one more thought. Who gets rich off of sick people? You guessed it. The pharmaceutical companies. And who sits on the boards of the FDA and the CDC? Who is ultimately responsible for healthcare policy in the United States? You guessed it. Big Pharma.
What if Lyme disease were purposely unleashed upon society for the benefit of the drug lords? This would be the ultimate in deceit and betrayal, and it may be a far stretch for your belief system. I know it is for mine. There are some very well-educated people, however, who believe in this hypothesis, based on evidence that they have found in various places.

But true or not, we must consider the role that pharmaceutical companies play in the development of healthcare policy. Do those who sit on the board of the FDA, if they are representatives of pharmaceutical companies, truly want people well, or do they want to make a buck? How can a drug company ever do that if people are healed and don't need their remedies in order to keep their symptoms in check anymore? Yes, there are well-intentioned souls who work for pharmaceutical companies, but they must not be the souls who are trying to make the purchase of natural healing remedies, such as vitamins and herbs, illegal, because the sales of these hurt their profit margins. They must not be the ones who are ignoring and denying the evidence about Lyme disease, because it doesn't serve their interests.

Why do I share this? It's certainly not cheering information, but it can help us to help one another, and that starts with sharing the truth with others, and becoming activists for change, so that research dollars become dedicated to efforts to eradicate the disease, unhealthy alliances between pharmaceutical and governmental organizations are broken, and sufferers are in the end, afforded proper treatment.

8 comments:

Lemon said...

Connie,

I don't really agree. If you expected the US government to be a protective parent, it's no wonder you are going to the other extreme and feeling betrayed.

I realize that lots of people share your feelings. But I think it's important to see that the government cannot be our parent and protect us from all disease and misfortune. Even if they wanted to, it is beyond human ability.

Medical science has succeeded in a few areas, but in many areas it is still at a complete loss. Cancer, AIDS, immune disorders of all kinds, are not usually cured by mainstream medicine.

Alternative, holistic, medicine may be a better approach for certain diseases, but mainstream medicine has fought against the alternatives, so there has not been much research funding.

I agree with you that the pharmaceutical companies are becoming rather evil, but that is inevitable with most highly successful and profitable organizations. They start out with good intentions but get carried away with power. We certainly cannot trust the drug companies -- all they really want is to get every man, woman and child on drugs.

But I don't think the drug companies are withholding cures for Lyme disease, AIDS, cancer, MS, Alzheimer's, etc., etc., If they could find cures, they would. There would always be more diseases to make a fortune on.

The truth is, in my opinion, that mainstream medical science is very limited in what it knows and what it can know. It is devoutly materialistic. The water cure you talked about would be ridiculed by most mainstream scientists. They don't understand how the body really works because they don't understand that most of the body is non-physical.

It's understandable that you are frustrated and angry about this. But there isn't really anyone to blame, in my opinion. It's the whole system, human nature, the way reality is constructed. We are all so limited.

I think science, and medical science, will gradually become less materialist, more open to alternative science ideas. But even then we won't have cures for everything.

Connie Killabugger said...

Hi Lemon,

Thanks for your opinion. I suppose "protective parent" was not the best analogy here. I do think, however, that most of us here in the United States would like to believe that the government is, overall, working with our best interests at heart. I say that, realizing that the government is an institution, made up of individuals.

I don't necessarily believe that drug companies are withholding cures--but I know that they have suppressed some that have been found in natural medicine. The FDA has been presented with tons of evidence about Lyme disease and what is needed to treat it, but it continues to disregard it. What I wrote about government institutions denying it as a chronic illness and that it can be treated with a few weeks of abx--isn't my opinion, but fact that has been updated in recent treatment guidelines.

I agree that we are all limited, and that much of the inefficiency in healthcare is due simply to ignorance or well-intentioned human error. But not all of it, and perhaps this is where we differ in our opinions on the matter.

Still, I can respect what you say. Let's hope that more people become aware of natural remedies, and that government one day acknowledges the truth about Lyme.

Connie Killabugger said...

Lemon,

I just wanted to clarify one other point. I don't see or expect the government to be a protective parent--I mentioned this analogy because I think some people have high hopes for government; they want to believe in its goodness, and because of that, they cannot tolerate the possibility that there might be evil in it. Or they may be like you, and think that problems do exist, but that they are not the result of evil intentions (but rather well-intentioned humor error, as I am inferring from your perspective?)
Thanks, Connie

Lemon said...

"drug companies ... have suppressed some that have been found in natural medicine. "

Yes of course they would do that. Mainstream medicine, and its friends the big drug companies, are powerfully opposed to natural or alternative medicine.

I do not completely disagree with you, and yes there are probably conspiracies, in a way. The big drug companies are more interested in making money than in curing diseases. They don't really care how patients feel, as long as they are on some kind of drug for life.

But the drug companies could make a lot of money keeping Lyme patients on antibiotics for life. But that idea is opposed by the insurance companies who don't want to pay for it.

So the powerful, "evil" organizations oppose each other, and are not necessarily in league against us. So things just aren't simple.

And I agree with you that the government should care about us and protect us. That's the whole reason for having a government. I guess I just meant that we should not expect too much from it, the way a child expects its parents to be gods. Especially when it comes to health.

I don't know if you realize how much political opposition there is to alternative medicine. The atheists have been in control of science for quite a while now, and they want to hold on to their power.

Of course atheistic, materialist, mainstream medicine can save lives and I am not against it. But the whole approach and philosophy has its limitations, and science will have to go beyond it.

I read a lot of anti-spiritual, anti-holistic, "skeptical" stuff. Those people are angry and arrogant, and they love to ridicule anything not in their college text books.

Connie Killabugger said...

Hi Lemon,

I agree it's probably more complicated than any of us understand. We all live with perspectives, that are influenced by those with whom we come into contact.

I appreciate what you have to say, and also agree that it's good not to have too many expectations of gvt. Or of anyone, for that matter!

Interesting what you have discovered about the "anti-holistic" folk. I wonder why they are so angry, and why their minds are closed off to receiving the truth about other forms of medicine? One has to wonder. I do, anyway!

Hope you have a great day and thanks again for sharing!

Lemon said...

" I wonder why they are so angry, and why their minds are closed off "

I like to argue with them sometimes, which could mean I'm a masochist. The nicest thing they call me is "idiot."

They equate science with atheism and materialism. They follow Richard Dawkins, if you are familiar with his ideas. There are big "skeptical" organizations, including the James Randi Foundation and others like it, that try to block funding for alternative science and medicine.

The call anything not already approved by their version of science "woo." They hate anything that suggests supernatural forces of any kind.

I appreciate their attempt to be scientific and rational, in a world full of money-grabbing frauds and fakes. But they take it off the deep end, disbelieving anything if science has not already proven it to be true. Personal experiences count for nothing, and they think all non-scientists are gullible fools.

Alternative medicine has not been researched thoroughly, since research is extremely expensive. Most research now is funded by giant drug companies -- no surprise that the results often go the way they want.

I have become fascinated by mainstream AIDS and cancer research, and how they twist everthing to make it look like they're making progress.

Connie Killabugger said...

Hi Lemon,

That is so sad to me--that there are actually organizations that try to block funding for alternative medicine. Crazy.

You make a good point about personal experience counting for nothing-it's as if, just b/c someone hasn't devised a test for it, then it doesn't work.

What a shame, too, about cancer and AIDS research. The bigger shame is that cures for these DO exist in alternative medicine, but nobody believes it if you tell them. Well, I keep praying, anyway, that Truth would be revealed to those who are seeking it.

Lemon said...

Connie,

I think I made it sound worse than it actually is. The anti-alternative bloggers I have been reading are going out of their minds because CAM (complementary and alternative medicine) is increasingly being taught in medical schools.

There are probably more and more MDs who are open-minded. I have just been reading the "skeptical" activists, and they are highly emotional and intolerant. For example: http://www.theness.com/neurologicablog/index.php

They especially hate Intelligent Design (which I strongly believe in) because it threatens to undermine atheism.

The "skeptics" have a lot of power, but I don't think they will keep it. They probably feel very threatened and outnumbered, and that could be why they're so angry.