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Greetings and welcome to my Lyme disease blog, a comfy cozy (and sometimes crazy!) place for cutting-edge information, encouragement and insight into the fastest-growing epidemic disease in the United States. In this blog you will find everything from bug-killing strategies to immune system and hormone help, as well as lifestyle and spiritual suggestions for healing from chronic illness involving Lyme disease. The information contained within this blog is based upon my own healing journey and what I have learned over the past eight years as I have been diligently digging and researching my way back to a better state of health. May you find it to be a source of hope, inspiration and wisdom in your own journey towards wellness.

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Friday, January 25, 2008

A New Way to Dose MMS?

I’m propped up against pillows in my guesthouse bedroom in San Jose, Costa Rica. For two days, I haven’t been able to get out of bed except to attempt a plateful of rice or some cinnamon tea. I hover near my best friend john and try to stay away from the chatty guests of this friendly place. Had I known MMS would leave me in such agony I might have waited to start the protocol. After all, it’s not convenient to be herxing in a guesthouse in a foreign country. But then again, I’ve never, in the two and a half years since I’ve been treating Lyme disease, been hit with a die-off reaction like this before.
And those in the Lyme disease world who know me, know that I don’t get strong die-off reactions.

It’s not that the other protocol I’ve done haven’t worked, but none have provoked such dramatic die-off reactions as MMS. I’ve never had nausea from a herx reaction. I mean, never. Until yesterday.

It’s left me encouraged and dismayed. Dismayed because I realize that I’m not as healthy as I thought. Just last week I was gallivanting through the streets of San Jose with my friend Jason, high on my energy horse and pleased that I had the stamina to be out and about for hours without suffering tremendous fatigue.

But it’s also encouraging, because it means that bugs are dying and that I don’t have to devise some intelligent dosing regimen to perpetuate a herx reaction. And my current experience is lending credibility to a theory I’ve been chewing on for awhile—namely, that if I back down on my MMS dose for a few days and then ramp up to the dose I was taking previously, I get sick, especially around the full moon. Current contention is that folks with Lyme disease should ramp up to two 15-drop doses of MMS per day. I’m wondering if that’s really necessary. My experience is teaching me that whatever dose I ramp up to, if I stay at that dose for a good week or two, cut it in half for another week, then immediately return to the previous dose, then I am sure to get a herx reaction.

While I’m of the sort to fire away at my infections with both guns, I have to admit that with MMS, it’s also nice to back down on the stuff to evaluate my progress. In the meager month and a half that I’ve been taking it, I’ve felt mostly worse, and so lowering my dose from time to time allows me to feel better, thereby enabling me to remember that I am yet healing. It’s just too easy to forget when you feel awful.

How sick am I really? I have to wonder. My gut feeling is that most everyone who takes MMS, Lyme or no Lyme, will experience a herx reaction because we all have infections, whether we realize it or not. Also, the intensity of a herx may not necessarily be indicative of the severity of illness. It may, in fact, demonstrate the opposite, since a strong immune system can mount a stronger response to infection.

As mentioned in a previous post, an adequate dosing schedule for MMS for Lyme disease has not yet been established. The knowledge we have about how to take it is based upon speculation of what has worked for other illnesses. The founder of MMS knows that two 15-dose drops daily will cure malaria. But we are its lab rats for Lyme disease.

Thus, if your current dose of MMS is starting to bore you; that is, if you are no longer herxing nor improving on it, then I encourage you to experiment with cutting back on your dose for a few days, or a week, and then ramp up quickly to the dose you were at before. I’m not a doctor; I don’t pretend to be an expert on MMS dosing; I’m simply offering up a suggestion based on my own experience. Start off by lowering the dose only slightly, however, so you can discern how dramatic of a reaction you will get when you increase the dose again.

9 comments:

Anonymous said...

Good insights Connie! And congratulations on your herxing, you're hitting something now. Love, Susie

lemon said...

Hi Connie,

I am doing salt/c, not MMS, but my question might apply to either. (Do you know any experts on salt/c, by the way?)

I am taking 12g of salt and of c everyday, and have been for about 5 weeks. I still have arthritis but other than that I am ok and have energy. More energy than before I got sick, in fact. This is surprising considering I wake up about 10 times a night from pain.

I am somewhat confused about exactly what herxing would feel like, and maybe it just depends on the person. I had some nausea and vomiting on one or two days since I started, but in general my stomach has been fine. I'm taking Activia yogurt which might be helpful.

So my question, I guess, is -- when I get a worsening of an arthritis symptom could that be a herx reaction? The pains get worse and better and worse, and move around. I wonder if that's just lingering Lyme disease, or if it could mean the salt/c is doing something.

Oh well, this is all probably unknown. I hope MMS will cure you soon!

Connie Killabugger said...

Hi Lemon,

Thanks for visiting!
Herxing often simply manifests as an exacerbation of symptoms. So yes, the worsening of your arthritis can certainly be a herx, as can the typical flu-like symptoms.

I wish you well in your healing journey, :)
Connie

Cass said...

Hi Connie --
May I ask how you're doing with the MMS? Is it the miracle 'drug' so many people are saying it is? Are you feeling significantly improved? Our symtoms are similar (oh that adrenal fatigue after minor emotional and mental stresses) -- I'm doing Cowden, rife, saunas, do I need to do this, too? It sounds a little scary although I'm unaware of any major problems with it as yet -- just don't relish those herxes UNLESS you're loving the stuff. Many thanks for your posts. I pass your youtubes around on California Lyme and really appreciate your informative videos and posts. Thanks so much.
Cass

Cass said...

Hi Connie --
May I ask how you're doing with the MMS? Is it the miracle 'drug' so many people are saying it is? Are you feeling significantly improved? Our symtoms are similar (oh that adrenal fatigue after minor emotional and mental stresses) -- I'm doing Cowden, rife, saunas, do I need to do this, too? It sounds a little scary although I'm unaware of any major problems with it as yet -- just don't relish those herxes UNLESS you're loving the stuff. Many thanks for your posts. I pass your youtubes around on California Lyme and really appreciate your informative videos and posts. Thanks so much.
Cass

Cass said...

Hi Connie --
May I ask how you're doing with the MMS? Is it the miracle 'drug' so many people are saying it is? Are you feeling significantly improved? Our symtoms are similar (oh that adrenal fatigue after minor emotional and mental stresses) -- I'm doing Cowden, rife, saunas, do I need to do this, too? It sounds a little scary although I'm unaware of any major problems with it as yet -- just don't relish those herxes UNLESS you're loving the stuff. Many thanks for your posts. I pass your youtubes around on California Lyme and really appreciate your informative videos and posts. Thanks so much.
Cass

Cass said...

Sorry for all three posts -- I was having password issues --
Cass

Connie Strasheim (aka Killabugger) said...

Hi Cass!

Thanks for your email and for sharing my videos with others. I hope that they have been helpful.

I took MMS only for about 3 months, because I decided to try an energy therapy and it would have been too much to also continue with MMS. Basically, in 3 months, it gave me stronger herxes than anything else I have ever done. I have detox problems, though, and so it was difficult for me to discern improvement, although I did notice that I had greater energy on the days when I didn't take it, and my brain fog cleared up quite a bit from it. You might want to consult Meredith or Jim on the Lyme Strategies Yahoo! group as they have used MMS longer term (at least 6-9 months).
It might be too much for your body to add another therapy--esp. if you want to do it full dose, but only you can determine that.
So yes, I feel it is powerful, but I don't know exactly how miraculous it has been for chronic Lyme sufferers. I think Meredith has been helped quite a bit by it.
I hope this helps!
Thanks,

Connie

Cass said...

Thanks, Connie. Good advice. I don't relish feeling bad for all that time again w/no guarantees at the end of it. Does sound a bit too powerful. I appreciate your counsel. I wish I could find some early trauma. My DO seems to insist upon it, but I just don't believe it's there hard as I try to find something even a little out of the ordinary. 'Course we don't get out of childhood in one piece, but mine was pretty uneventful. I think. Thanks again.